NIHFinal Rule
Privacy Act; Implementation
HealthcareTechnology
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Summary
The National Institutes of Health (NIH) is implementing new rules to protect the privacy of personal information it collects during medical research and healthcare programs. These rules explain how the NIH will safeguard your data, who can access it, and what rights you have to see and correct your information.
Key Points
- 1The NIH must protect personal health information and research data collected from patients and study participants
- 2People have the right to access their own medical records and request corrections if information is inaccurate
- 3The NIH must limit who can see personal information and use it only for approved purposes
- 4People must be notified if there is a breach or unauthorized access to their private health information
- 5These rules apply to all NIH research studies, clinical programs, and medical databases across the country
Key Dates
Published
March 24, 2025
This summary is for informational purposes only. It may not capture all nuances of the regulation. Always refer to the official text for authoritative information.
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